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@faith1

Hi Justin, thank you for responding and connecting me to the other NMO responses. Yes, I have been living with NMO since 1/2011. I woke up with numbness on the right side of my body. It felt like I slept wrong and my body was asleep. What made me know something was wrong when I touched my neck and I couldn't feel the pinch I gave myself. I spent almost two weeks in Westchester Medical Center with no diagnose. They ended up sending my blood work to the Mayo Clinic where it was diagnosed NMO. I started taking Azathioprine which worked for a while but after having several flair's I researched other NMO specialists in the New York area and found one at Mt Sinai who introduced me to Rituximab Infusions with Solu-Medrol on 5/2016. I have not had another flair since. I still have numbness in my finger tips and feet but it has improved since switching medication. I do have spasms in mainly my legs and feet but they pass quickly and Baclofin helps but can make you drowsy. I'm thankful for Rituximab because each time I had a flair they would cause new parallels.

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Replies to "Hi Justin, thank you for responding and connecting me to the other NMO responses. Yes, I..."

I have a question for anyone with experience with NMO. I was diagnosed six months ago and am being treated with Rituximab. I asked my Neurologist about returning to my former activity level and he said to go for it. I find that I get tired out faster and then the next day I have a bad day, more pain and fatigue. If I push though that, am I more likely to have a relapse than if I take it easy?

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