Hello @betsays, I can relate, I also have cookie bite hearing loss and it's an extremely frustrating hearing loss. I find my hearing aids are insufficient in many situations. The moderator Julie here has made some very helpful suggestions for me and I expect she will respond to you also. I haven't got very far yet but I'm waiting for another appointment with Kaiser and I plan to push for them to refer me to an outside specialist if they can't provide the service I need. I know exactly what you mean because I feel they don't understand 'cookie bite' and I want to see someone with experience in this rare hearing loss. I find the hearing aids I have when turned up drive me crazy with the magnification of other sounds which don't need magnification. I have Phonak hearing aids.
Good luck and I'll share any progress I make.
Ingrid