I went from walking normally in mid April to being in a wheelchair first week of June to walking with a cane and rolling walker to now walking independently on my own. Physical therapy steroids gabapentin and rituximab

Hi Kandyd. I was diagnosed in March. At that time I couldn't walk. I stayed in hospital over a month. Had Plasma Exchanges and steroid IV. Also physical therapy. I am taking azathioprine to stop future attacks. Gabapentine and Baclofen for nerve pain. I went from wheelchair to a walker and now I can walk without an aid. Not perfect and I do get tire really fast, so I still use an aid if I'm going out. Praying that you will also be able to get out the wheelchair.

kanyd, my husband has Devic's Disease(NMO). He has 2 spinal lesions, one at the base of his neck, which makes it difficult and painful to use his hands. And one on his lower spinal cord, he is in a motorized wheelchair, he can't use his legs to stand on. He can only use them only to transfer on a transfer board to bed, car, shower,etc.He was diagnosed March 2016 with neck lesion diagnosed Dec. 2017 with lower back lesion. He is taking carbamazepine, prednizone, he does plasamaphersis every 6 weeks, and retuxin twice a year. But like you, his vision is not affected which makes me wonder bc his eye dr said his vision is perfect. Right now he is not getting worse but he's not getting better either. He says he feels like he might not be able to use his hands much longer. At first they thought he might have transverse myelitis. i wish you well. I'll update if he has any changes. Marie