← Return to Struggling with making an osteoporosis treatment decision

Discussion
Comment receiving replies
@windyshores

@yani2023 there are several medications that are possible, depending on how significant your bone loss is. Did you see an endocrinologist?

With the added complication of immune suppressants after kidney transplant, I would try to see an endocrinologist - maybe in the same hospital system that you had your kidney transplant.

Jump to this post


Replies to "@yani2023 there are several medications that are possible, depending on how significant your bone loss is...."

Thank your your post and insightful information. Yes, I did see an endocrinologist. She wants to know if I had hyperthyroidism. Just saw my latest blood exam. No hyperthyroidism is present from blood levels of thyroid. YEA!
My blood test taken by my transplant doctors have never mention that I had this condition. I will be seeing a dr from Columbia Prsbyterian NYC who treats kidney transplant patients who have Osteo. How. many patients he treated is the sixty four thousand question and what were their results and experiences I hope to find out.
I understand everyones outcome with medication is different. Anti rejection medication affects bones and makes them weaker and anyone of these medication has to be very very careful when combing medication to treat other conditions.

As an additional consideration, I just need to know what the Columbia doctor patients' experiences have been after being treated with certain meds. I have a phobia with shots from childhood. Passed out and gashed my face and had concussion as a child with an injection. It's embarrassing to freak out with shots as an adult.
I believe I have to take a leap of faith with the new to doctor..
I maintain my vertebrate pain with CBD balm (pea size amount). I apply a very low dose and this works to relieve pain. My transplant docs approved my particular use CBD balm as it does not enter into bloodstream affecting any medication being taken. CBD and a Tylenol get me through my day in order to function. I also use weights on ankles, hips and wrist for at least a hour in morn and hour is afternoon or evening. Can't wait till it turns warm to walk outside.
Additionally I am considering having an infusion of my own stems cells administered to me. Adipose Mesenchymal / Stem Stems cells are increasingly being used for many purposes, problem is that it is a very expensive treatment. This is part of research study. My own stem cells have been cyro stored by a company out of Houston, Texas who has submitted their findings to FDA for approval this year primarily used for Rheumatoid arthritis, and other conditions. There are many companies all over the country. People have to be very careful when choosing these treatments.
THE use of stems are very promising. IN my own opinion only I believe stem cells will be the medicine for this century. FDA regulation is vital. Several notable hospitals in US and aboard are doing research in this area. Check Mayo Clinic, George Washington University, and I believe a hospital in Cal. FDA takes a very long time to approve any medication. Presently stems cell used in research not approved as an actual medication for many medical conditions. Other countries quite different on use of stems cells. Hope there is an answer somewhere. Sorry I get carried away. Any suggestion would be appreciated Thank

Thank you for your reply. I had an followup appointment with my nephrologist. Medication Mycophen Acid/antirejection medication was doubled as antibodies were found in blood work.. Was very concerned that I would once again have body and hand tremors. I Prayed all night after taking double dose and luckily my body must have gotten used to this anti rejection medication. No tremors YEAH!
I will be seeing a more local endocrinologist who specifically treats kidney transplant patients.
From other transplant patients I have spoken to it appears endocrinologist are prescribing Prolia. What about biophosphates. Taking Prolia injections scares me to death due to the side effects. I read research studies from different hospitals Teriparatide injections may have promising results. Understandably each person may have different result. In 2023, There is no absolute consensus has been reach as to the best medication for osteoporosis. I will have to take the leap of faith and hope which ever medication I decide to take will not affect my new kidney.