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Looking for info and people with Neuromyelitis Optica (NMO)

Brain & Nervous System | Last Active: Nov 22, 2022 | Replies (49)
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@uniqu3

Hi my name is Jackie I was just diagnosed with devices disease would like to connect with people for support please thanks

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Replies to "Hi my name is Jackie I was just diagnosed with devices disease would like to connect..."
Teresa, Volunteer Mentor | @hopeful33250 | Oct 11, 2017

Hello Jackie, @uniqu3

Welcome to Mayo Connect. I appreciate your post about this rather unique disorder. I did a little research on Devic's Disease and found some information on the Mayo Clinic website, http://www.mayoclinic.org/diseases-conditions/neuromyelitis-optica/basics/definition/con-20036360.

It sounds as if this might be a difficult problem to diagnose and can often be confused with a MS diagnosis. As we look forward to getting to know you better, please share with us as you feel comfortable: How were you diagnosed? How long did it take to get a diagnosis? What types of treatments have been suggested?

Teresa

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uniqu3 | @uniqu3 | Oct 11, 2017

I started in June with bad and different symptoms going on with my body August was when they told me I had NMO.still waiting for infusion no funds so cant start meds. I'm from Wisconsin no support groups here

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