← Return to Need Surgery on Cancer & Just Found Out I Have MAC! Help!

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@bellsina71

That's good that the hole is relatively small and they caught it right away! I'm going to do whatever they say. I am very terrified though about having the cancer with this and then possibly having to have some chemo which is immune compromising and having this MAC!?! It's absolutely terrifying and then I was reading an MRI report about the mass on my intestine and it said basically that there was a possible spiculated subtle area of that tumor that was extending outside the intestine. That is terrifying. Because if that's true I would have to get chemo, I'm praying that it's possibly precancerous that's extending. Most of the biopsies that I had were precancerous cells on this tumor except there was some places that had the very aggressive cancer very tiny areas that were very suspicious on the biopsy. I just want to get this out of me! My surgery is supposed to be on saturday. I see infectious diseases on Tuesday, and I'm hoping they give the go ahead that I can still have it!!
I had a complete proctocolectomy. I have Lynch syndrome which caused colon cancer, my brother died at 32 he was a year and a half older than me when they found out I had it five years later they removed the whole colon, and they actually found Cancer all over in the inside of the colon that didn't break through the colon wall but they didn't see on the colonoscopy. So it was very odd. So now I am faced with this intestinal cancer that's aggressive plus this MAC!
Do you happen to know anyone or heard of anyone with a non lung cancer with mac? I tried to do a search on here but I can't find much of anybody. I'm sure there is cases of it.
You've given me such great information, I appreciate it so much! I feel pretty silly that I didn't know what O2 was now. Haha you sound like you're very active, and that's really great, I take care of my 5-year-old granddaughter as I told you before and she keeps me going and going! I really appreciate all your information!! The weather here has gotten much better. The snow is actually melting a little today. I'm so happy about that!!!
And I hope you have a great day. And any information or anything you think I should know, please send me an email. Thanks so much for all your help. And I still think it's so crazy that you had your colon partially removed, I never thought I'd meet anyone that had that. It's been 15 years and I haven't yet until now. Haha
Angela

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Replies to "That's good that the hole is relatively small and they caught it right away! I'm going..."

Having lived with a great deal of health-related terror (in addition to NTM), I honestly can feel your fear. It's overwhelming, isn't it? You've been through so much already...facing this surgery must be both terrifying and a relief. When I was decided to go through with my colon surgery, I sobbed so hysterically as they wheeled me in to prep me that the doctor almost decided not to do it. Unless one has lived with this kind of fear, one cannot truly understand the body quakes that shake you from the inside out. But as you've said, removing this cancer will be the best thing for your body. I pray that it has not invaded any other area and that chemo will not be necessary.

On a positive note, I know many NTM/MAC patients that do not have lung cancer...me included. I have bronchiectasis, a cavity, the very unwelcome pseudomonas, and have had several strains of mycobacterium, but I've never been diagnosed with lung cancer. I don't think it's a given, but someone else in the group may know far more about this than I do.

Please let us know when your surgery is scheduled to move forward so we can lift you up as you go through it. This group has been very helpful to me just reading what others post. Often times questions are answered that I didn't even know to ask...and I've had NTM for almost 13 years and have asked A LOT of questions. Mostly what I need though is knowing that I am not alone, that there are others out there who don't know me but care about me anyway, and that no one in this group has ever made me feel ashamed, less than, or stupid for anything I've ever asked or said.
Big Hug & Many Prayers,
Busy

Angela — I think you may have had your surgery on Saturday. Can you let us know how you are doing? You are amazing and will have lots to teach others from all this. Sending you warm healing cyber hugs!