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@mjroe28

Hello, hope your day is going good overall. Every day will be different. Unfortunately I’m not too familiar on that medication. I’m on warfarin and that comes with its own ups and downs. Overall for the syndrome. You can have exhaustion, nausea, headaches, hair loss, even anxiety. If you already didn’t have those. Of course medicine will have its benefits with its take backs. But it’s for life so it’ll take some getting used to. Whatever happens, don’t overwork yourself, rest when you need to, don’t stress on things you can’t control. You’re indefinitely your medical advocate. So if something feels off, it is! Don’t be afraid to speak up! Don’t wait and you’re never exaggerating. It’s better to check than to wait. I know it’s scary and more so because they don’t have a lot of information. What’s helped me is morning sun before 9 am, rest, I and FB has groups for us. Although not many just helps to know you’re not alone. And there are those there that actually do take your medication with the same condition. So it’s more relatable.

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Thank you for sharing your thoughts and experiences.