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So your case interests me a lot. So how do you know you had RLS because you say it is gone but RLS is not curable. So I am not a vegetation and should have gotten plenty of B12 but think it may have been driven by my PPI use for reflux. But did not use that much so not sure? But sound like you had B12 deficiency also? What your your level when they tested? Also do you take 900mg of gabupenton at bedtime or throughout the day?
Replies to "So your case interests me a lot. So how do you know you had RLS because..."
my situation is very rare. Only 300 people have it; please go to Mayo Clinic/Steve Grinstead. Also, Brain and Life April/May issue/Steve Grinstead. Google Superficial Siderosis. It has caused me to develop RLS and neuropathy among the 39 symptoms. I did have a B-12 deficiency and RLS caused by nerve damage from the SS. The RLS and the B-12 is under control as long as I take my supplements and meds. If your B-12 gets dangerously low they can give you a shot. I am not familiar with gabuenton. There is a difference between "gabupenton" and gabapentin, I think. I take my meds at bedtime. I know that I have RLS because it used to wake me up at night. Also, I did a sleep study and they said that I have RLS. I googled "gabupenton" please check spelling. Hope this helps.
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Also, I immediately got B12 shot series and now fine and take orally so b12 levels fine but still have the aweful RLS symptoms of tingling and pain…the part I am baffled by is moving my legs does not relieve anything…the pain and tingling isn’t her regardless