← Return to Pretty sure it is RLS

Discussion

Pretty sure it is RLS

Brain & Nervous System | Last Active: Mar 7, 2023 | Replies (25)

Comment receiving replies
@merpreb

I never had any testing. My neurologist actually asked my husband if my legs moved a lot when we are in bed and Dave said yes. The rest is history. If I don't squelch the feeling of something crawling around in my legs it drives me insane. I have to move them to stop the feeling. Of course, it comes right back as soon as they're still. Also, I never used to be able to sit still. If I was flying I drove the person nuts to me for changing positions so much. Now it's not a problem.

I am a huge proponent of seeking a second opinion if something is still off. This is your body and if something is wrong, you know it. Have you told the dr. tha the gab isn't really working? Maybe it's the wrong dose?

So, what will you do now? How about a second opinion?

Jump to this post


Replies to "I never had any testing. My neurologist actually asked my husband if my legs moved a..."

I have an excellent PCP who is dedicated to helping me through all of this, we are working different options with meds and she is referring me to a university neuro center to see if they can provide some better answers. Right now I am on Wellbutrin and taking gabupenton. I have a prescription of ropinrole but holding off on taking them since I have read some things I don’t like with these dopimine replacement drugs