Hi there, I was diagnosed with my first sarcoma in July of 2020. It was removed along with my uterus. Subsequent scans of my pelvis found a different cluster of sarcomas in my stomach. So, because I also have neurofibromatosis, the only way to remove them is with a Whipple surgery. I also have pretty severe depression after watching my 19-year-old son die after a short battle with MPNST. Because he also had NF and where it was located, surgery was out. His battle with NF was horrific and "The worst case of NF the NIH has seen" according to Dr. Widemann. My other son also has NF and had bilateral optic gliomas, pseudoarthrosis of the tibia, and several benign brain tumors. He also has been diagnosed with an intellectual disability. We are hoping he gets to stay on disability. I was hoping to get disability because of my chronic pain, PTSD, ADHD, and severe obstructive sleep apnea. Both of my knees have pretty significant arthritis but the judge said no, despite years of records. Recently, they discovered an ulcer growing on one of the GISTs in my stomach. we are really struggling.