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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: Nov 12 5:54am | Replies (395)

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@delormv

Hello @lhwoz I had invasive DCIS, which I know is different than ILC, but my oncoscore was 25. I was 54 at the time of diagnosis. With an oncoscore, as with many other types of test scores, there’s usually a range that the actual score might be. My score was 25, but it actually could have been as low as 22 or as high as 28. I don’t remember the standard error of measurement, but my point is, my score might have been higher than what was actually reported. I was 54 at the time deciding whether I should get chemo. My cancer was stage 1 with no lymph node involvement and genetic testing was negative for all cancers tested. My medical oncologist said had I been 50, chemo would definitely be recommended. She also said since I’m 54 and with an oncoscore that might actually be higher than 25, that she recommended chemo. I had 4 rounds of chemo, which I’m glad I did even though it was a scary decision to make, which I don’t regret. It gave me peace of mind knowing I did everything possible to reduce my chances of any cancer remaining. I know this is my story with a different cancer, but that was the decision I made. I hope this gives you a little more information to help you with making a decision whether to have chemo. I wish you well and all the best 💗

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Replies to "Hello @lhwoz I had invasive DCIS, which I know is different than ILC, but my oncoscore..."

Thank you so much for your reply. I hate being in the grey area (at least in my mind it's a grey area). I will see what my Med Onc says today and go from there ❤️