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Unnamed Autoimmune Disease

Autoimmune Diseases | Last Active: Feb 24, 2023 | Replies (5)

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@colleenyoung

Welcome @hinac, the symptoms you describe, like fatigue, joint pain, and cognitive function, are shared by many autoimmune diseases. Autoimmune diseases can be challenging to diagnose.

You might find some helpful tips and experiences from members like @becsbuddy @carla314 @dxcrestsyndrome2020 @carpe_bean @katk and others in these 2 related discussions:
- What can cause ANA titre of 1:2560? https://connect.mayoclinic.org/discussion/what-can-cause-ana-titre-of-12560/?commentsorder=newest#chv4-comment-stream-header
- Tips for Getting a Proper Diagnosis of an Autoimmune Disease https://connect.mayoclinic.org/discussion/tips-for-getting-a-proper-diagnosis-of-an-autoimmune-disease/

Has the hydroxychloroquine helped your symptoms at all? Have you considered getting a second opinion?

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Replies to "Welcome @hinac, the symptoms you describe, like fatigue, joint pain, and cognitive function, are shared by..."

I have had the same dx given by Dr.’s through 2 different Health Plans. Have seen rheumatologist, dermatologist, and others within each of the two plans who have all confirmed, along with my testing, Crest Syndrome.

I did decide not to try the hydroxychloroquine. I filled the first RX but called my rheumatologist and said I was not ready to take that step yet. Dr. Was okay with my decision.

Thank you for the info and links to previous discussions which are very helpful.

The hydroxychloroquine doesn't seem to be doing anything.

I am thinking of getting a second opinion.