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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: May 27 11:09am | Replies (370)

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@timely

Hi Nancy:

I so much appreciate your information.
My last radiation boost therapy is 3-01-2023 which is the last of 6.

As far as prevention/checking afterwards, I seem to have 2 choices:
1) Mammogram once a year only. (That site claims it is their new guidelines.) I have to confirm it is a 3D mammogram myself as ILC will not show up on regular mammogram.

2) Mammogram and ultrasound together once a year.
Radiation Oncologist in 2nd time I asked about 1) site, said that most patients do not want to have an MRI. They do not endorse an MRI. But, ILC shows up with MRI's.
Neither of these sites balance every 6 mo.

3) There may be a 3rd site which I could check yet.

From what I have read, ILC does not show up at all if one just has an ultrasound. It would show nothing...and is not useful for ILC.

****One does need to have a 3D mammogram to see ILC.
I was told that if I had had my mammogram earlier than August 2022, they would have found nothing..Plus, normally, the next mammogram would have been August 2023.

I need some feedback from everyone as I have to make a decision on this on Monday Feb. 27th, 2023 when I see the Radiation Oncologist. He is advocating a once a year Mammogram which would be thus next August 2023 and then next August 2023.
There would be a balance of every 6 months to see either the Radiation Oncologist or Breast Surgeon. They alternate these visits with their nurse pra tioners every other visit.

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Replies to "Hi Nancy: I so much appreciate your information. My last radiation boost therapy is 3-01-2023 which..."

Timely, Every person's body is a bit different , and I am not a medical doctor. But I would ask (1) do you have an oncologist (in contrast or in addition to a radiation oncologist)? (2) If so, get your oncologist to go to bat for you with the breast MRI-and the 3D diagnostic mammogram. I have never had a problem with Medicare or secondary insurance in getting these covered. Speak up, and if needed shout out. You have nothing to lose and perhaps a lot to gain. (I have had 4 breast MRIs, without any problem, just a bit noisier than a CAT scan. Whoever told you most women do not want to have a breast MRI may not have had the full facts in front of him/her, to be polite. ) --Nancy