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Chronic Pain | Last Active: Feb 28, 2023 | Replies (12)
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Thank you for the words of support, everything you said was completely accurate as it relates to how I've been feeling about trying to feel better!
I actually JUST applied for the Mayo Clinic and unfortunately they are out of network for my insurance and I can not afford the cash pay at this time.
I have not heard of CSS but i am going to look it up and see if it sounds like it might be something related to what I have going on!
Replies to "Thank you for the words of support, everything you said was completely accurate as it relates..."
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Yep, insurance can be a problem. I ran into the same snag. My insurance had no out of network coverage at the time. But get this, once I was denied being seen at Mayo I started thinking outside the box and digging. During my research I came across this video about CSS by Mayo Clinic's Dr. Sletten.
Central Sensitization Syndrome - Dr. Christopher Sletten:
- https://www.youtube.com/watch?v=vJNhdnSK3WQ
For me, watching this video was a light bulb moment. I cried and felt seen. I made my husband watch, and he was equally amazed at how it related to me.
Once I understood CSS and realized Mayo had a pain rehab center (PRC) to help people with chronic pain, I was all in on getting there. That meant switching insurance plans upon eligibility and paying a higher premium to have out of network coverage. I graduated the Florida PRC over 2 years ago and am doing well.
Everyone is at a different place in their pain journey, but rest assured no matter where you are - you must hold on to hope and positivity. Things will get better!
I look forward to your thoughts on the video and whether it resonates with you. You may not connect with every part and that's ok, but I sure hope it helps you in some way.
In what ways have you been managing stress over the past couple of years? Have you found any self-help tools or strategies that work for you?