Hello @kmarie9o, welcome to Connect. I'm real sorry you're going through this mess, especially at your young age.
Your story resonates with me based on the range of unexplainable symptoms with no positive medical test results, and failed treatments. Ultimately, all of what you've described can be a recipe for the "cycle of pain" which is this big merry go round of pain that keeps escalating, failed meds and treatments, doctor hopping hoping for answers and getting none, while emotional and behavioral changes begin from stress, depression, hopelessness, etc. The more you hurt, the less you move then deconditioning sets in and it becomes hard to get out of the cycle. I understand how you feel, having been there myself.
Do you think you may want to apply to Mayo Clinic? It's possible a larger teaching hospital may have ideas. I'm providing the application link should you feel that might be your next step -
Mayo Clinic -
- http://mayocl.in/1mtmR63
It's hard to settle on the fact that doctors say they can't figure out what's wrong and you keep wondering if something has been missed. I myself had nothing left to rule out and Mayo denied seeing me for that reason. In my case I self advocated, kept researching, and landed on Central Sensitization Syndrome (CSS). Have you heard of it?
Thank you for the words of support, everything you said was completely accurate as it relates to how I've been feeling about trying to feel better!
I actually JUST applied for the Mayo Clinic and unfortunately they are out of network for my insurance and I can not afford the cash pay at this time.
I have not heard of CSS but i am going to look it up and see if it sounds like it might be something related to what I have going on!