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Anyone else with Churg-Strauss or EPGA?

Autoimmune Diseases | Last Active: Nov 30 11:09am | Replies (44)

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@oakwoman

I have Churg Straus also and was put on Nucala as well. However within 12 hours of taking Nucala my lower legs broke out into small and medium lumps that were all very painful and some turned into open sores while others truned into large painful red rashes. There were so many I couldn't count. My arthritis doctor was stumped as to what or why I got these lumps. I was on Nucala for 3 months when we decided to take me off of it. I think my breathing did improve during that time but the pain from the lumps has disrupted my life so much that It wasn't working. I canot sleep because just having a blanket or sheet resting on my legs was painful. I describe the lumps as small volcanos of nerves.
I'm wondering if anyone else has these lumps/lesions/sores?

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Replies to "I have Churg Straus also and was put on Nucala as well. However within 12 hours..."

That sounds painful. I have not had that happen to me. I have had some rashes on my legs after shaving which is part of the vasculitis issues. They didn't hurt just looked awful. I have not had any adverse effects from the medication. Fatigue maybe. Its purpose to reduce my eosinophils has been successful. I know there are some other medications like Fasenra that might be better if you are having a reaction. Could there be another disease of the nerves? What are they doing to reduce your eosinophils?