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Lobular Breast Cancer: Let's share and support each other
Breast Cancer | Last Active: 3 days ago | Replies (395)Comment receiving replies
Hi Timely,
my treatment plan is:
--Breast MRI once a year, alternating with
--Mammogram once a year. It's a Diagnostic Mammo, technically bilateral diagnostic mammo digital with CAD.
So, every 6 months I have some imaging done.
Anti-estrogen: I take immunotherapy medication Arimidex, 1 mg once a day.
My oncologist and my breast surgeon are in charge of keeping track and writing the orders for the scans. I see each of them in their office once a year (alternating every six months) and each performs a breast palpation. Records are on-line so everyone can see what's happening and the results.
I also had genetic testing and counseling after the surgery. The testing is free, the counseling is not. A very good idea, as a gene showed up that was mutant. It affects not only me but potentially my 3 nieces, 1 nephew and numerous first cousins, for breast and prostate cancer. Armed with the official letter from my health care service (Sutter), one of my male first cousins went to his doctor, had the genetic testing, and results showed he also had the mutant form of the gene. Doctors looked further and found prostate cancer.
My thoughts are with you as you undergo your treatments. Although the treatments can be scary, try to focus on the present, on the things you love, and those who love you, and don't worry about the future. --Nancy
Replies to "Hi Timely, my treatment plan is: --Breast MRI once a year, alternating with --Mammogram once a..."
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Hi Nancy:
I so much appreciate your information.
My last radiation boost therapy is 3-01-2023 which is the last of 6.
As far as prevention/checking afterwards, I seem to have 2 choices:
1) Mammogram once a year only. (That site claims it is their new guidelines.) I have to confirm it is a 3D mammogram myself as ILC will not show up on regular mammogram.
2) Mammogram and ultrasound together once a year.
Radiation Oncologist in 2nd time I asked about 1) site, said that most patients do not want to have an MRI. They do not endorse an MRI. But, ILC shows up with MRI's.
Neither of these sites balance every 6 mo.
3) There may be a 3rd site which I could check yet.
From what I have read, ILC does not show up at all if one just has an ultrasound. It would show nothing...and is not useful for ILC.
****One does need to have a 3D mammogram to see ILC.
I was told that if I had had my mammogram earlier than August 2022, they would have found nothing..Plus, normally, the next mammogram would have been August 2023.
I need some feedback from everyone as I have to make a decision on this on Monday Feb. 27th, 2023 when I see the Radiation Oncologist. He is advocating a once a year Mammogram which would be thus next August 2023 and then next August 2023.
There would be a balance of every 6 months to see either the Radiation Oncologist or Breast Surgeon. They alternate these visits with their nurse pra tioners every other visit.