← Return to Radiation induced Brachial-Plexus Peripheral Neuropathy Patients

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@dolast

In 2004 I was diagnosed with advanced breast cancer, had chemo, lumpectomy, then radiation in 2005. This was at Baylor in Dallas TX. Yes, they saved my life! But in 2017 I started having tingling in my ring finger. I was in Idaho by then and my GP said just put a towel under my arm when I'm working at my desk. Things got worse, so I went to a hand doctor who said I probably had carpal, also arthritis (after he took exrays); suggested I use a brace for carpal. Went back, he ordered a neck exray, then referred me to neurosurgeon who said I my hand issue (which now was into ring and pinky finger and that side of my hand) was because of C7-8 and T1 disks compressing nerves. Did not recommend surgery, wasn't really interested in doing anything for me. Condition got continually worse, went to 2 other doctors, said hand surgery would be elective and because of Covid would have to wait. 3 years after that went back to neurologist. He ordered MRI and EMG. EMG doctor did tests and said he was almost 100% sure the issue was generated from the brachial plexus area from radiation. HE order cat scan and another MRI of brachial plexus area. The neurosurgeon's PA called me when results where in and said it looks like tumor on lung apex and in the brachial plexus. Scared the hell out of me as he starting going on about large cell vs. small cell lung cancer, I need a biopsy, etc. He ordered a cat scan. I asked my primary care doctor to find me an oncologist in light of this news. I saw the oncologist who did not feel it was cancer, looked more like scarring. He ordered PET scan and ultrasound. Results came in. No cancer, just scarring. Called neurologist to see what can be done (surgery, PT). That was 3 weeks ago. No call back. No communication. Nada. I'm lost now.

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Replies to "In 2004 I was diagnosed with advanced breast cancer, had chemo, lumpectomy, then radiation in 2005...."

Ask oncologist to confer with the neurologist. Someone has dropped the ball.