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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: May 27 11:09am | Replies (370)

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@timely

Hi Nancy:

I am ILC with pleomorphic in situ. Discovered August 2022 and surgery Nov. 21, 2022.
I am just finishing up 21 treatments to the left breast.
14 whole breast and now 6 tumor boost site.

My question is:
What is the plan to keep check on you?
Are you doing mammograns once a year or more often and are you doing ultrasound with your mammograms?
Do ILC patients need MRI's with their mammograms?
What anti-estrogen meds are you taking?

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Replies to "Hi Nancy: I am ILC with pleomorphic in situ. Discovered August 2022 and surgery Nov. 21,..."

Hi Timely,
my treatment plan is:
--Breast MRI once a year, alternating with
--Mammogram once a year. It's a Diagnostic Mammo, technically bilateral diagnostic mammo digital with CAD.

So, every 6 months I have some imaging done.

Anti-estrogen: I take immunotherapy medication Arimidex, 1 mg once a day.
My oncologist and my breast surgeon are in charge of keeping track and writing the orders for the scans. I see each of them in their office once a year (alternating every six months) and each performs a breast palpation. Records are on-line so everyone can see what's happening and the results.

I also had genetic testing and counseling after the surgery. The testing is free, the counseling is not. A very good idea, as a gene showed up that was mutant. It affects not only me but potentially my 3 nieces, 1 nephew and numerous first cousins, for breast and prostate cancer. Armed with the official letter from my health care service (Sutter), one of my male first cousins went to his doctor, had the genetic testing, and results showed he also had the mutant form of the gene. Doctors looked further and found prostate cancer.

My thoughts are with you as you undergo your treatments. Although the treatments can be scary, try to focus on the present, on the things you love, and those who love you, and don't worry about the future. --Nancy