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@nightops

@loribmt i have a few local family and friends, but no groups that I am connected with face to face. When I was diagnosed I had 3 active lesions, and very little bands in my CSF. I changed up my diet, started exercising, and really got connected back to my faith. Since then I’ve studied and switched up my vitamin/supplement regimen to a daily vitamin, omega 3, vitamin D3 (5000iu), and B Complex, as well as a good probiotic. I thought I was taking all the right steps. Copaxone injections were going well once I learned how to not inject into muscle (that was a hoot). The more I read, the more I wonder if I shouldn’t have started on a high efficacy DMT to start. I’m not sure how much I trust my neuro - he seems like a great guy, but I never thought to ask if he specialized in MS. He suggested Copaxone. Lately I’ve been following Dr. Aaron Boster out if Ohio, and he thinks any neuro recommending a low efficacy DMT is a red flag unless you regularly have bad side effects or are pregnant.

On top of everything, I transitioned to a role where I am now over 2 departments. I’m sure that hasn’t helped, but it’s something that I’ve wanted to do for a long time…I just wish it hadn’t all happened at once. I went from running half marathons, to wondering if I’m going to make it to my 20th anniversary in May.

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Replies to "@loribmt i have a few local family and friends, but no groups that I am connected..."

The timing on some of these life events are just so unfair isn’t it? It’s like we finally hit our stride in life and then there’s these enormous hurdles. Congratulations on the promotion. I can see that would add some extra stress…again, with the timing! But I have no doubt you’ll be making your 20th anniversary in May. That’s a milestone!

Please don’t give up hope. It’s so easy to start feeling helpless and full of despair. We all have those moments but it’s how we deflect ourselves from those thoughts that help propel us forward. I love to see how proactive you are with diet, exercises and research. Knowledge is power and you’re doing all the right things.

I do wonder, like you, if a second opinion might not be a bad thing? Finding an MS specialist would be a good place to start and of course, if you’d like a second opinion from Mayo Clinic…I’m a bit biased but their neurology teams are in a league above.
Here’s a link to the Mayo home page where you’ll be able to start the appointment request process. http://mayocl.in/1mtmR63

How often do you see your neurologist and have followup MRIs?