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Internal vibrations, not sleeping well, stressed out
Brain & Nervous System | Last Active: Jul 18, 2023 | Replies (36)Comment receiving replies
I truly empathize with what you’re going through. Though my symptoms mimicked MS it wasn’t my diagnosis. It was an autoimmune response to my bone marrow transplant. However, my sister did have MS. She was diagnosed at the age of 50 and lived a pretty normal life until she passed away a few years at the age 84. (Not from MS).
MS treatments have progressed hugely from the time she was diagnosed almost 40 years ago. If you have a neurologist with whom you’re comfortable and trusting, let this doctor do the worrying for you as to the next step.
Recalling my sister’s experience there were some days when she overdid with work or physical exertion, then she would have a tendency to have a flair of symptoms. Anxiety can be a huge culprit in some of the symptoms too.
I’m happy you’ve been talking to others in the Spine group who have MS. Each person’s story is different, of course, but it helps to talk with others who have the same disease. Do you have any local support groups near you?
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@loribmt i have a few local family and friends, but no groups that I am connected with face to face. When I was diagnosed I had 3 active lesions, and very little bands in my CSF. I changed up my diet, started exercising, and really got connected back to my faith. Since then I’ve studied and switched up my vitamin/supplement regimen to a daily vitamin, omega 3, vitamin D3 (5000iu), and B Complex, as well as a good probiotic. I thought I was taking all the right steps. Copaxone injections were going well once I learned how to not inject into muscle (that was a hoot). The more I read, the more I wonder if I shouldn’t have started on a high efficacy DMT to start. I’m not sure how much I trust my neuro - he seems like a great guy, but I never thought to ask if he specialized in MS. He suggested Copaxone. Lately I’ve been following Dr. Aaron Boster out if Ohio, and he thinks any neuro recommending a low efficacy DMT is a red flag unless you regularly have bad side effects or are pregnant.
On top of everything, I transitioned to a role where I am now over 2 departments. I’m sure that hasn’t helped, but it’s something that I’ve wanted to do for a long time…I just wish it hadn’t all happened at once. I went from running half marathons, to wondering if I’m going to make it to my 20th anniversary in May.