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Internal vibrations, not sleeping well, stressed out

Brain & Nervous System | Last Active: Jul 18, 2023 | Replies (36)
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@nightops

@loribmt absolutely, and only being a few months into my diagnosis, I’m terrified. Given the results from my run of SoluMedrol, I was hoping for RRMS, but I’m afraid it might be PPMS with all of this. Might be unfounded. My neuro has me on Copaxone, but I’m starting to wonder if I shouldn’t look to something with higher efficacy like Ocrevus.

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Replies to "@loribmt absolutely, and only being a few months into my diagnosis, I’m terrified. Given the results..."
Lori, Volunteer Mentor | @loribmt | Feb 23, 2023

I truly empathize with what you’re going through. Though my symptoms mimicked MS it wasn’t my diagnosis. It was an autoimmune response to my bone marrow transplant. However, my sister did have MS. She was diagnosed at the age of 50 and lived a pretty normal life until she passed away a few years at the age 84. (Not from MS).
MS treatments have progressed hugely from the time she was diagnosed almost 40 years ago. If you have a neurologist with whom you’re comfortable and trusting, let this doctor do the worrying for you as to the next step.
Recalling my sister’s experience there were some days when she overdid with work or physical exertion, then she would have a tendency to have a flair of symptoms. Anxiety can be a huge culprit in some of the symptoms too.
I’m happy you’ve been talking to others in the Spine group who have MS. Each person’s story is different, of course, but it helps to talk with others who have the same disease. Do you have any local support groups near you?

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