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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: May 27 11:09am | Replies (370)

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@lhwoz

Hello all -
I have ILC, diagnosed in Dec, had lumpectomy and sentinel node removal and then re-excision bc margins weren't clear. Likely starting radiation in a few weeks and then anti-estrogen meds after that. My nodes were technically deemed negative, however 1 node had what they called micrometers, or an isolated tumor cell, still deemed node-negative though. This concerns me, of course.

Although we don't meet again until Monday my Med Oncologist let me know that my OncoScore was 22. I am 55, and thus the chemo cutoff score is 26 I believe? I was expecting my score to be lower to make the Chemo decision a bit more defined/clear, but wit ha score of 22 I find myself a bit distraught over being somewhat close to the "can go either way" category?

Can anyone shed light on their scores and decisions? I am getting more info before I meet with her on Monday.

Thanks so much-
laurie

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Replies to "Hello all - I have ILC, diagnosed in Dec, had lumpectomy and sentinel node removal and..."

Hello @lhwoz I had invasive DCIS, which I know is different than ILC, but my oncoscore was 25. I was 54 at the time of diagnosis. With an oncoscore, as with many other types of test scores, there’s usually a range that the actual score might be. My score was 25, but it actually could have been as low as 22 or as high as 28. I don’t remember the standard error of measurement, but my point is, my score might have been higher than what was actually reported. I was 54 at the time deciding whether I should get chemo. My cancer was stage 1 with no lymph node involvement and genetic testing was negative for all cancers tested. My medical oncologist said had I been 50, chemo would definitely be recommended. She also said since I’m 54 and with an oncoscore that might actually be higher than 25, that she recommended chemo. I had 4 rounds of chemo, which I’m glad I did even though it was a scary decision to make, which I don’t regret. It gave me peace of mind knowing I did everything possible to reduce my chances of any cancer remaining. I know this is my story with a different cancer, but that was the decision I made. I hope this gives you a little more information to help you with making a decision whether to have chemo. I wish you well and all the best 💗