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Bone Pain in Multiple Places Due to Tamoxifen Use?

Breast Cancer | Last Active: Feb 26, 2023 | Replies (5)

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@bluebird70

Hi Kerri. I was diagnosed March 2020 at the start of covid at the age of 70. IDC in right breast grade 3 stage 1 no lymph node involvement. I had a mastectomy of the right and wanted the left removed as well but because of covid they had cancelled all elective surgery. My oncotype score was 51. So had 4 rounds of chemo. Could not tolerate any of the AI’s so finally on Tamoxifen In early 2021. Your message is so timely because I am having so much rib pain, back pain and hip pain and I know it is from the Tamoxifen. I get it off and on but this time it is rougher somehow. I just went through blood work and waiting for the results of the chest X-ray. I am sure there is nothing but that isn’t where my brain leads me unfortunately. I am considering taking a tamoxifen holiday for a couple of weeks to get myself from feeling so crappy. I do have an appt with the surgeon on March 6th to have left breast removed. Not sure what she will say but I have the support from both my Doctor GO and oncologist. Thanks for listening to todays rant 😞. Rita

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Replies to "Hi Kerri. I was diagnosed March 2020 at the start of covid at the age of..."

I had been on Tamoxifen for two years but started having pains after three months of a couple of steadily increasing ca15-3 marker results I had a PET scan. It turned out to be bone mets in the hip, spine neck and liver.

Don't stop Tamoxifen without consulting your doctor and make sure your Oncologist is aware of ANY health issues big or small

I do