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MCTD (Mixed Connective Tissue Disease)

Autoimmune Diseases | Last Active: Jan 15 10:29am | Replies (210)
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@jholland

Impossible to KISS or Keep It Simple Stupid!!
EDS is my demon and has granted me pain after four hip replacements. Shoulders feel like railroad spikes. Replace the the surgeons say but you may not be able to dress yourself after. Oh! I care for three horses (ride a bit. Used to breed, train) have as dog and three cats. A widow. 3do am the only human(?). Life is difficult on pain pills and shots but was worse without them. Electric implants for pain were suggested. Insurance disagreed. Oh well! Heigh ho heigh ho ……..

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Replies to "Impossible to KISS or Keep It Simple Stupid!! EDS is my demon and has granted me..."
jesa | @jesa | Feb 23, 2023

I have EDS too. Not as badly as you. What anti-inflammatories are you using? I find that if well-sourced, cucurmin, moringa, and high doses of DHA help a great deal with the pain. Transdermal ultrasound vagus nerve stimulation is also a neurological winner. I am also looking into photobiomodulation, which is coming of age: See the division at Mass General Hospital doing this based on significant research by Hamblin. I do not want to be a slave of opiates if I can help it,

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