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Do they take the clitoris when they do vulvar cancer surgery?
Gynecologic Cancers | Last Active: Apr 2, 2023 | Replies (21)Comment receiving replies
Hi, new to the group.
Dx with Stage 11C Vulva Melanoma in December, 2022. PET scan negative and sentinel nodes negative x 2. Large R side tumor near clitoris. Had radical vulvectomy in January - path showed tumor was 14mm deep with positive margins so had another surgery yesterday with wider excision and removal of clitoris. Even though I’m 79, I’m feeling down about the removal. Feels like a significant loss to me.
I will start immunotherapy next week and consult with a radiation oncologist also next week to see if that treatment is effective at this point.
I appreciate being able to join this group as I don’t know anyone personally going through this.
Replies to "Hi, new to the group. Dx with Stage 11C Vulva Melanoma in December, 2022. PET scan..."
@kanderstag I'd like to add my welcome to this Support Group and to this discussion.
Event though I was well past menopause when I had a radical hysterectomy (endometrial adenocarcinoma) that removed uterus, cervix, ovaries and fallopian tubes in 2019 I felt a real sense of loss. Of course I was no longer fertile but that wasn't the point. So while I don't share your diagnosis I do understand the loss. That can be the case no matter what our ages are.
When do you meet with the radiation oncologist? I am hoping you have a good outcome with immunotherapy.
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@kanderstag, you're right to acknowledge this loss. I know that @redd4848 and @ftwtxgirl will understand this first hand and are willing to share their experiences too.
Kanderstag, this is all so recent for you, recovering from surgery, sense of loss and turning around to get ready to talk about future treatment of immunotherapy and radiation. You must have lots racing through your head. Feel free to let it all out here. Ask questions and then ask some more.