Hello, I’m so sorry you’re going through this very difficult experience with your son. I can’t imagine what my mother is feeling going through this journey with me as well. It’s very much this can’t be right and a lot of maybe they got the wrong chart… but once I reached acceptance. Yes, it’s very rare let alone in men. I feel it’s rare because they make it very impossible for diagnosis. Once someone has had a what they call a “catastrophic event” meaning, pulmonary embolism, strokes, or clotting of any sort. And after the hematologist will retest you 12 weeks apart to confirm. Some will have lupus with APS or a mix of anticoagulant disorder with something else. Since he’s experienced an event and it’s positive. Warfarin is usually the best treatment for him. All the other treatments would still put him at risk for thrombosis risks. I know it takes a lot of getting used to. But always in your heart if you’re not at ease get 2, 3, 4 as many opinions as you need. To feel better about what is going on, to put your mind at ease. Because you and your son are the biggest advocates for his care now. One thing that helped me. Was obviously the support of my family. And they have Facebook groups if you on check. They can be very helpful. I hope all goes well for you guys and you get all the answers that you are seeking. And I wish your son all the best. And take care of yourself because you can’t take care of him if you can’t do that for yourself.