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DiscussionChronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 9 hours ago | Replies (7052)Comment receiving replies
Replies to "I'm Carolyn. I have a chronic, mild pain in the right side of my head. My..."
I’m Tim, I have chronic pains in my pelvic area caused by the pudendal nerve. I originally did not know what was causing pain in both sides above the penis and had burning in what felt like the tip of the penis. I went to six different urologist about 10 years ago taking test, urological, MRI, ultrasound, blood test etc finally having surgery on the left side which did not help. I learned to live with the pain which would come and go. About four years ago when the nerve became active I had urinary frequency, urge/ reflex incontinence and started to get spiking pains in the rectum and pelvic areas. In March of last year the nerve activated and has not gone away. The pain that was in the left front became very bad, this occurred when I had a retrograde ejaculation. At times I did not want to walk. In August I was diagnosed with prostate cancer and had a radical prostatectomy which also removes the seminal vesicles. The bad pain on the left side was gone. I had pain in the rectum area and urethral area after the surgery. The pain in the rectum area got so bad I could not sit and the pain would go through the roof when I had to go causing fecal incontinence The pain in the urinary/sphincter/ureatha area made me feel I had to urinate all the time and I was having bladder spasms with the catheter in and when it was out. If I coughed electrical pain spikes would emanate into my legs and chest. The nerve is hypersensitive it appears to sensing pressure. I have gone through pelvic Pt, and the fecal incontinence is gone and I am able to sit on a donut with minimal pain The pain in the urinary area has become less and I do not get the spiking pain. The nerve is still active in I feel tingling on my buttocks skin, burning in the urinary area but I feel I have the bladder spasms as well as stress incontinence from the surgery and have to wear full protection all the time. Overall with the low pain level I have now I feel better than I have in ten years and it has helped me get rid of my anxiety. I did not realize how much the pain was impacting me. Best wishes to everyone.