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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 8 hours ago | Replies (865)

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@dawnblair33

I'm here to get information and read testimonials about Sarcomas, and treatment options. My mom was diagnosed with Breast cancer in 2016. They caught it early enough to do a lumpectomy, which was successful. Nevertheless, in 2018 the Breast cancer returned. My mom opted to just have her breast removed, at which time her Oncologist encouraged her to have radiation treatments to heighten the chances of it not returning. However, she was not informed of the risks. My mom fully trusted her Dr's and went through with the radiation. All was well for some time, until mid 2021, out of nowhere her she fractured a rib. After further testing, it was discovered that my mom had developed Angiosarcoma, and informed that it was caused by the radiation treatments for the Breast cancer. We were devastated! I tried to encourage my mom to get a second opinion, concerning treatment options because it didn't make sense to me that if Angiosarcoma is very rare and they didn't know much about it, how could they be sure that Chemotherapy and more radiation is the right treatment option? Come to find out, the minute my mom started the 3 months of chemotherapy, the cancer began to spread! Not even 2 weeks after completing the chemotherapy, the cancer had spread to her liver, lungs, kidneys and bones. Then 3 months later my mom passed away. This didn't make sense to me, she went so fast, being at her side watching her suffer devastated me, and I will forever be haunted by the sound of my mom taking her last breath! My mom's battle is over, but I feel compelled to get information, education, and hear testimonies of other people's experiences with their diagnosis and treatment!? I'm so curious to know about how they are being cared for during their battle! I feel so cheated, because I know my mom would not have done radiation treatments if she knew the risk! Can someone, anyone help me understand what just happened, and why?

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Replies to "I'm here to get information and read testimonials about Sarcomas, and treatment options. My mom was..."

I’m so sorry to hear about your Mum. My Dad has sarcoma in both of husband lungs and he’s never had radiotherapy - we’ve been told sarcomas are rare too and radiotherapy was not an option. We’ve been offered Trabectedin chemo which we know is not a cure but with the aim of stabilising the growth of tumours in the lungs. Can I ask which chemo your Mum had as I have read around the subject and there doesn’t be seem to be a lot of options in this area. We’ve been told without treatment Dad is looking at less than 12 months 😢. Take care xx

I meet my radiologist next week and will ask about risks