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Anyone have the FGFR3 antibody gene?

Neuropathy | Last Active: Jul 31 10:32am | Replies (147)

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@seanywonton

I just found your post because I was looking into a clinical study for myself, and you have to have the antibody you are mentioning, or another antibody, that is causing Small Fiber Neuropathy. I don't know if that's the disorder you have, but take a look at the study. There may be some helpful info even if that's not what you have (this intravenous treatment they are studying) . Best of Luck.
(It's not letting me post a link, so search for this: "IVIG in the Treatment of Autoimmune Small Fiber Neuropathy With TS-HDS, FGFR-3, or Plexin D1 Antibodies")

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Replies to "I just found your post because I was looking into a clinical study for myself, and..."

Hello @seanywonton, Welcome to Connect. I see that you wanted to post a link and thought I would share the link for you since new members cannot post links for a short period of time to prevent spamming and advertising in our discussions.

--- IVIG in the Treatment of Autoimmune Small Fiber Neuropathy With TS-HDS, FGFR-3, or Plexin D1 Antibodies: https://clinicaltrials.gov/ct2/show/NCT04153422.

Have you signed up for a clinical trial? Do you mind sharing a little more about your neuropathy diagnosis?