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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: May 27 11:09am | Replies (370)

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@nancyjop

Dear Lois, After my lumpectomy, I was referred to a radiation oncologist. He said, given my surgical results and scans, that he would not recommend radiation, that it would not add a day of extra time to my lifespan. Whew. Very reassuring. My oncologist and surgeon did not recommend chemo as I already had an auto-immune condition (Psoriasis). ( Before the surgery, they also did not recommend a mastectomy. ) A third alternative was immunotherapy, the path I chose. I now take one tablet at 1 mg dose of Arimidex ( Anastrozole) per day. I'm halfway through the 5 year treatment plan and so far, so good. Side effects are hot flushes and some grogginess when I wake up; I don't drive a car until the grogginess goes away. I can't drink wine or other alcohol. For hot flushes, 3 of my doctors recommended Venflaxaline, but it made me nauseous so I quit. Nearly 3 years later, the hot flush intensity has faded.
You should share with the closest members of your family what you are feeling. They really want to know and help. Do not shut them out. That will just make them feel more helpless, guilty, etc. You WILL feel scared, and the first time that happens, you will feel scared that you feel so scared. This will pass. Think of this fear as a wave coming toward you. Just ride the wave rather than resisting it. I found it helpful to immediately start an ordinary task, like unloading the dishwasher or sweeping the floor. The very ordinariness of our (my) daily lives and tasks seems to "reset" the brain.
Keep in touch. --Nancy

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Replies to "Dear Lois, After my lumpectomy, I was referred to a radiation oncologist. He said, given my..."

Thanks so much, Nancy!
The immunotherapy is the estrogen blocker. I will have to take it for 5 yrs also.
So..one reason this is so hard to share with my daughter, is, her 38 year old husband was diagnosed with a Glioblastoma brain tumor in September of 2021..3 weeks before what was going to be a beautiful wedding. He took a seizure during the night...and the nightmare began. They have a 5 yr old son.
He was operated 3 times, extensive radiation at Duke University Hospital and just finished a year of chemotherapy.
Praise to God he is doing great. MRIs every 2 months..so far, so good..and I am believing God that he has granted this great husband and father the miracle that I prayed and prayed for, he does have occasional seizures 😑, but he is back working full time and, so, what more should I ask from God??
I just don't want to add to my daughter's stress..she has been just amazing through the horrible hand they have been dealt...now this.
So,. I do have my best friend who has come to every appt with me and so I am grateful for her!!
Also, for caring people like you!
Where were you treated?
Thank you so much for sharing your story with me❤️❤️