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Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: 4 days ago | Replies (1384)Comment receiving replies
My T score was -2.8 before going on Forteo. In the two years that I tried to improve naturally, I went from -2.8 to -3.2 at which point I knew I had to go on meds. The first year I was on Forteo, my density reverted to -2.8. Interestingly, the second year I was on the drug, my density declined to -2.9. Had I gone on Forteo initially, my scores likely would have dropped into the osteopenia range but now I'm playing catch up. After Forteo, I decided upon HRT as the best option for maintenance. I decided on those two meds as the most "natural" approach to bone-building and maintenance as they are hormones that the body recognizes. I have not been on any other meds though I have to remain open. It has been a few years and the HRT has provided stability with even a slight gain at my last reading though you have to take that with a grain of salt as arthritis shows up as gain in bone density so it might possibly be that. There is no way of knowing for sure. I am overdue for a dexa and am a little concerned due to the stress of the last few years. I'm sure my cortisol was super high through it all and that's not good the bones! In the meantime, I do everything possible that is in my control as there is so much that is out of our control!
Yes, I am familiar with McCormick. Read his book years ago. Also Lani Simpson.
May I ask what your T scores are and what your journey has been?
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teb. I was diagnosed with osteoporosis in 2014 with first PCP (spine -3.5, hip -1.7). Took Alendronate for 4 yrs. Improved my diet and exercise. I went on med holiday in 2019 (spine -3.3, hip -1.5). In 2020 I changed PCPs. She was looking at possible secondary causes when she left pre pandemic on medical leave and never returned to the practice. Two of these tests (NTX and 24 hr urine calcium) came back below norm or abnormally high. No explanation of test results then pandemic hit. It wasn't until Dec 2022 that I went back to a new, third PCP and had my last DXA. Interesting my spine remained stable -3.3, hip -2.2, femoral neck -2.7 and forearm -2.4 (both femoral neck and forearm were never measured before). I do walk every day usually 3 miles. I'm also a photographer hiking all over with camera gear on my back. I've been keeping a food log recently and realized I haven't been getting enough protein and essential vitamins/minerals needed for bone remodeling. I'm guessing this is a major part of my issue. This new PCP wants to put me on Prolia indefinitely followed by Alendronate. At my request he repeated the NTX urine test which again shows below normal range again (22 in range 26-124). He tested my parathyroid and it came back normal. I'm concerned with the NTX results when he's recommending an antiresorption med. Does this mean I'm not breaking down bone fast? yet my DXA T scores have gotten worse? He admitted he's not a specialist in osteoporosis and has referred me to an endocrinologist. I just tried scheduling an appointment with the endocrinologist and the earliest I can see his recommended endo (or any other endocrinologist in this office) is August. I just left a message back with the PCP for recommendations on how to proceed forward.
In the meantime, I've re-read Dr McCormick's book and looking for any pearls of widsom. Possible consult with Dr McCormick or a osteopath/functional doctor. My husband is not a fan of either ideas. I do believe I need meds at this time. I'm just concerned how long meds can help if I don't get underneath the cause. What happens when I exhaust all med options? They do have time limits and the risks grow greater the longer you use them.
So like you, while I weed through the doctor/med issue, I'm trying to focus on those things I can control e.g., diet and exercise. That's why I've been asking so many questions re diet. Sometimes I wish I knew more in 2014 or asked different questions versus a doctor bullying me into meds right away. That's water under the bridge I guess. Just got to deal with it where I am now. And yes, my cortisol has got to be super high over the past two months. I feel like I've been going through the 7 stages of grief... (shock, denial, anger, bargaining, depression, testing, acceptance)!