Nov 18, 2022 I had robotic RP and the surgeon spared the nerves on one side. Pathology reported clean margins and lymphs were negative. Pre surgery PET detected cancer cells only in the prostate and encapsulated.
Post surgery the surgeon reported cancer was encapsulated in the prostate.
Just prior to surgery PSA had risen to 10 and after biopsy Gleason of 8.
I just had my first post RP PSA and it came back 0.03 and I find this worrisome. My worry is made worse because I allowed myself to believe, foolishly, it would be 0.00. I see the surgeon tomorrow after pelvic PT (3rd appt).
My PSA started to rise over 10 years ago was being monitored and in 2014 a biopsy was done after it reached 4.5 but found nothing. Then 5 years ago it jumped to 8, fell to 6, then 5.4 then back 6.4, then down etc. Then 10 in July 2022. The decade + anxiety with up and down PSA's has been pretty bad experience with tests every 3 - 6 months. I know, preaching to the choir....
Now at 0.03, and panicky, I hope the surgeon has something to relieve some of anxiety.
I've been left with bad incontinence and ED, topics for another time.
I'm 73 and retired in MN. I'm glad this forum exists and until this morning I have not had anyone to share info with others coping.
Thank you
lb1049:
Prostate Cancer Foundation PCF.org has a webinar series; Jan 17 2023 program on rising PSA after RP or Radiation (replay, transcript and Q & A).
May be relevant to some of your thoughts and concerns.
Best wishes to you and all of us.