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Diagnosed with DCIS: How do I decide on treatment?

Breast Cancer | Last Active: Mar 20 10:00am | Replies (345)

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@jermis212

Hi, I am new to this group so forgive me if I sound scared right now. I was just recently diagnosed with DCIS (microcalcifications in my upper right breast). I went to visit my breast surgeon for the first time yesterday and she said I need an MRI as a few things look concerning to her. I was told the "other" things noted in my u/s and diagnostic mammogram were cysts. This is located right by my nipple area which means I wouldn't be a candidate for NPS. My question is, can DCIS be located in multiple parts of the breast? Or is this now considered a possible IDC with DCIS? It is such a mind game and now I have wait 1.5 weeks for my MRI. I am most concerned with what type of treatment I will need if this is now a mass and microcalcifications. I am planning on a bi-lateral mastectomy to no have to worry about this coming back. Thanks for your help everyone, this is so scary.

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Replies to "Hi, I am new to this group so forgive me if I sound scared right now...."

I know this is terrifying and waiting is the worst but try to breathe. 😔 Deep breaths in and out. I know that sounds ridiculous but it allows your body to relax a little.
I know what it is like to make yourself crazy with “what ifs”. I have had to learn to say, I will get through what comes, when it gets here. Give yourself grace, you are going through a lot.
I also have to contain my worry time to 30 minutes morning and night. Then I can say to myself, not now…………you can worry about that tonight, and remain in the present. This self talk helps me get through the waiting.
I have also learned to write down all the questions I have, then when I am with the doctor I can make sure they all get answered.
Your MRI is scheduled, do you have a follow up appointment with the surgeon?

Hello, I was diagnosed with DCIS in November 2022. I had two areas in the right breast, around 10mm each and one small area in the left breast, around 2mm. All diagnosed within one year from my last mammogram. I had a double mastectomy, no reconstruction, in January 2023. Final pathology showed only DCIS, lymph nodes were clear, no radiation or hormone blockers needed. All this to say it is possible to have DCIs in more than one area. Stay strong, you can get through this.

Ductal Insitu is in the ducts
Invasive
Means it spread
To the canals ( that’s what I hav)
My Dr. Told me calcifications
Mean nothing.
An MRI picked up a cancerous cyst the Ultrasound and Mammogram
didn’t. I get
My results of my lymph on Tues
I had 3
Tumours removed and an augmentation., Surgeon and Plastic surgeon directed
Me away from a
Mastectomy to Skin saving
Lost
Bld supply areola& nipple
Necrosis but now circulation is returning after bad post
Op infection & still on IV antibiotics
I’m here for anyone
It’s not really a journey more of a nightmare
Try hard to Stay strong