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DiscussionAnyone been diagnosed with CIDP? It's very rare
Autoimmune Diseases | Last Active: Oct 7 6:02pm | Replies (153)Comment receiving replies
Replies to "Hello, do you mind describing your treatment for CIDP?"
Can you scroll down to where I responded to Lisa Lucier’s question?
I elaborated on my IVIG treatment & experience.
Even though I had a very negative reaction & I was getting ready to go Duke for new testing & diagnosis, the 2nd treatment was administered. It was supposed to be 3 treatments. One per month for 3 months & each treatment 5 days straight. The pic line stayed in my arm all 5 days (with lots of problems).
My neurologist currently has me receiving IVIF Gamma Globulin every 3 weeks. I hydrate heavily for 2 days before and 2 days after to help with headache side effects. Before the infusion I am given orally, Benedryl for possible rash side effects, and Tylenol for headache. My infusion is done slowly, taking approximately 5-6 hours as to hopefully prevent side effects. I commonly have fatigue for the next few days and sleep as needed. But I also have fibromyalgia and other chronic pain issues .
Hoping you will get some help soon. God bless you.