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NETs: Competing Pathologies--how to sort it all out?

Neuroendocrine Tumors (NETs) | Last Active: Mar 6, 2023 | Replies (9)
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@lastround

What was Mayo’s prognosis? I’m on my 3rd hospital, fist 2 wrote me off last year. If it was me I’d go to Mayo, I’m in Boston so I go to Dana Farber but Mayo has a lot of specialists who specialize in these cancers.

Good luck

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Replies to "What was Mayo’s prognosis? I’m on my 3rd hospital, fist 2 wrote me off last year...."
Miriam, Volunteer Mentor | @mir123 | Feb 22, 2023

Thanks for writing. Mayo said it was a neuroendocrine tumor in the breast. They concurred with NYU, UNM, and my oncologist that it should be treated with 6 months of chemo, lumpectomy, and radiation. No prognosis. There are currently no protocols for NET in breast other than breast cancer ones. Very little in terms of research,except a bit showing that chemotherapy led to earlier death--but sample too small to be valid.

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