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Anyone been diagnosed with CIDP? It's very rare

Autoimmune Diseases | Last Active: Oct 7 6:02pm | Replies (153)

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@lisalucier

Hi, @tjp4 - thanks for the update. I can imagine it would be a relief to have a $0 copay. It would be great to hear about your infusions and how they go for you when you start.

You talked about being ready for some relief. What symptoms are the most bothersome lately?

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Replies to "Hi, @tjp4 - thanks for the update. I can imagine it would be a relief to..."

My legs are getting weaker and they hurt all over. Now my calfs have a sharp pain. I walk like I'm drunk. My balance is terrible. I hope to start the infusions sometime this week. Thanks for asking.

The symptoms most bothersome is the pain and weakness in my legs. I'm now using a walker because I have fallen too many times. I also have terrible back pain.