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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
How fast did you reduce Actemra. Did you go down a few days at a time or weekly. Did you have any side effects such as high cholesterol or any liver issues. I am debating on getting the Omicron vaccine because I hear it triggers Pmr. Thank you for sharing as you are the only person that has been on Actemra longer than I have.
Replies to "How fast did you reduce Actemra. Did you go down a few days at a time..."
I had monthly Actemra infusions for 1 year, tapering to every other month for 1 year and now I'm getting infusion every 3 months. My blood is tested every 3 months. I failed to mention that I've also been treated with physical therapy for my hips and shoulders. I have found that my daily movements are much better when I do the prescribed stretches with resistance bands each day. I live in NW Wisconsin so the cold months are the most difficult.
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I'm not an anti-vaxxer by any means, but since I believe my PRM was triggered by my second booster, and from what I've read, I am reluctantly forgoing any vaccines or boosters in the future.