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Anyone been diagnosed with CIDP? It's very rare

Autoimmune Diseases | Last Active: Oct 7 6:02pm | Replies (153)
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@lisalucier

Hi, @sdswoboda53 - are you feeling that overall, the immune globulin IV (IGIV) infusions are worthwhile? How are you dealing with the fatigue afterward? @sherlock - what are your thoughts on this?

@tjp4 - did you end up being treated with a different IVIG than the doctor originally recommended? I recall your talking about the co-pay being quite high. How is the treatment going for you?

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Replies to "Hi, @sdswoboda53 - are you feeling that overall, the immune globulin IV (IGIV) infusions are worthwhile?..."
tjp4 | @tjp4 | Jul 5, 2019

Hello, they changed the ivig med to panzyga and having a infusion clinic administer the medication. Thus, changing to the generic my cost/copay is$0. Such a relief but I'll believe it after the billing. I had them out it in writing. I believe the infusions will start next week. I'm so ready for some relief. Hope your doing well

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