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Autoimmune Diseases and Fatigue

Autoimmune Diseases | Last Active: Oct 4, 2023 | Replies (544)

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@astaingegerdm

@joansmurphy
You are NOT lazy. Don’t listen to negative people.
When I was at my worst there were days when I was on my bed, unable to do anything, actually panting.
The family didn’t really understand. The doctors didn’t either.
Most doctors don’t understand the extreme fatigue and exhaustion associated with autoimmune illnesses.
Did you have any treatments for cfs and long Covid?

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Replies to "@joansmurphy You are NOT lazy. Don’t listen to negative people. When I was at my worst..."

Last summer I was very short of breath & ended up in the hospital. They gave me steroids which helped a lot. I could physical therapy. I was at my best in December but since then I’m sleeping about 12 hours a day. I’m now on LDN. I don’t see a difference but I’ve heard it can take 8 months to reach it’s full effect.