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Diagnosed with DCIS: How do I decide on treatment?

Breast Cancer | Last Active: Mar 20 10:00am | Replies (345)

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@audrirose

I was diagnosed as DCIS in Situ: Solid intermediate nuclear grade, Margins Clear
Had surgery on 1/25/23
Seen oncologist today for treatment, he told me that I need chemo once a week for
12 weeks. It is just sinking in. I thought my diagnosis does not require chemo.
I have 1st round in one week but I am now anxious to get a 2nd opinion.
Has anyone gotten chemo for this grade of breast cancer? I am not eligible for
the MRI because I have only 1 kidney.

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Replies to "I was diagnosed as DCIS in Situ: Solid intermediate nuclear grade, Margins Clear Had surgery on..."

@audrirose are you triple negative (ER, PR and HER 2 negative?) Or HER2+? Did you have an Oncotype Dx test?

If you were ER+ and HER2- an Oncotype usually guides treatment decisions.

I think a second opinion could help you in this situation!

Yes, get another opinion. Or have another conversation with him and see if he meant radiation? If not invasive, most treatments options include lumpectomy, radiation and meds.

I had the same diagnosis. Had a lumpectomy on 1/24 and having a second on 2/28. The margins were clear but they were too small. I had a recent diagnostic mammogram that shows no micro invasions. She oncologist and she said 5 years of hormones. My surgeon says this is always followed with radiation. I have 2 appointments coming up. One is with a radiologist at Proton center the other is with regular radiation oncologist. We are going to see what is the best route. I would definitely get another opinion. I have not heard of anyone having chemo for this diagnosis.

I have DCIS and was surprised I needed chemo. I have invasive that is in at least 1 lymph node, plus have a high Oncotype DX score of 28 so chemo is my best chance for a cure.
I only have 1 kidney and can get breast MRIs.

I was diagnosed with DCIS 18 months ago … Grade 3. I had two lumpectomies to make margins were clear … 20 radiation treatments and am on hormone suppressant meds for five years. I have not heard of chemo used for treating DCIS. I agree with others and would get a second opinion.