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← Return to Cough ! What could it be?!
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I did the watch and wait for a small (1cm) PNET on the head of my pancreas that was diagnosed in 2012 after years of symptoms. In 2019 I had a modified Whipple surgery, liver resection and liver ablation. My primary NET didn't grow any larger over the 7 years. Ask a lot of questions, get a second opinion from a NET specialist, so that you feel comfortable with your decision. My quality of life improved after my surgery because mine was functioning so in the end I wish I had surgery alot earlier. In 2012 I should have done more research/reading on my own and should have asked a lot more questions. Wishing you well on your journey.
Replies to "I did the watch and wait for a small (1cm) PNET on the head of my..."
Thank you for your honesty. I have plans for a second opinion. My NET is also active. I'm getting real tired of
Dr.s that don't know symptoms telling me "it's to small to be causing symptoms, let's do another scan and more blood test." I need a Dr that I can really talk to.
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Thank you for your honest answer. I am not a wait kind of person. My net is only 6mm, but it's active. I don't have anyone including a dr.s. I am really tired of hearing "it is so small". My symptoms aren't small!