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Anyone been diagnosed with CIDP? It's very rare

Autoimmune Diseases | Last Active: Oct 7 6:02pm | Replies (153)

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@jazzy27

I was given Rituximab and it worked great in 2 months

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Replies to "I was given Rituximab and it worked great in 2 months"

Thank you

Hello jazzy, thanks for replying. Due to the high cost of gamunex they decided to use a generic called panzyga. My cost is 0 but I'll; believe it after a few weeks of not getting a bill. The panzyga seemed to help during the initial first 5 days
But after a couple of days later I'm back to the way i felt. I'm hoping the maintenance dose will help. When you were diagnosed did you get a 2nd opinion? Thx

I see it has been months since you were here, years for me. But I stopped by, saw your post, and was interested in your progress since rituximab. It has been a couple years for me since last infusion and I think I am at least not worse. Never "recovered"--still fatigue, (greatly lessening) awful nightime neuropathy in legs, still atrophied arms and other muscle loss (formerly quite muscular for an old chick), better appetite (autonomic involvement too), though hard to get weight back--that all still sounds bad but for months I was told I had rapidly progressive ALS , so I am mostly grateful. How has it been for you? Holding steady? Improved?