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Hello @meleelee1 and welcome to the NETs discussion on Mayo Clinic Connect. I'm glad that you found this forum. It is important to have support and encouragement when you are dealing with any type of cancer, and especially a rare cancer like NETs.
We have several members who have NETs on the pancreas. Can you share more about this diagnosis? For example, was this discovered because you were having symptoms, how long ago was this found, are you scheduled for follow-up scans to determine if there are any changes?
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It started with what I thought was appendicitis. I thought I was going to have to have my appendicts removed. They did a ct scan with contrast. Found the small mass. I changed Primary Dr.s but no one knows about NETS and I have no one in my area to talk to.
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I found my NET by the grace of God. I was having what I thought was appendicitis. Had a ct scan because my white blood cells were high. The scan showed my NET. I was hurting so bad and I don't have a uterous or ovaries. I now am nauseous, dizzy, and faint. My surgeon at the windship in Atlanta wants me to wait. I want a second opinion by a specialist at Mayo. My sides right at the base of my ribs feel like someone has vise grips. I have to wait for my change of insurance on March 1st to just find out if I can go to Mayo. I have noone to talk to here.