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Lobular Breast Cancer: Let's share and support each other
Breast Cancer | Last Active: 3 days ago | Replies (395)Comment receiving replies
Dear laf70, I had a lobular carcinoma removed at age 72 in 2019. It was discovered entirely by accident as my surgeon was originally doing a surgical biopsy because I have dense breasts. It's normal to be scared. It's not like we non-doctors encounter this situation daily in our lives. Here's what I have learned: live much more in the present moment, with a small amount of attention to the future, and none at all (if I can help it) to the past. I needed to increase my patience and persistence, which I had in moderate supply. I treat my health routines, from exercise to diet to appointments to dealing with all that paperwork, as a part-time job, to which I give it the same kind of attention I gave my workplace job. Tell others--friends and family-- about your diagnosis and treatment plans. They will respond with unexpected and overflowing support that you will treasure. --Nancy
Replies to "Dear laf70, I had a lobular carcinoma removed at age 72 in 2019. It was discovered..."
Hi Nancy:
I am ILC with pleomorphic in situ. Discovered August 2022 and surgery Nov. 21, 2022.
I am just finishing up 21 treatments to the left breast.
14 whole breast and now 6 tumor boost site.
My question is:
What is the plan to keep check on you?
Are you doing mammograns once a year or more often and are you doing ultrasound with your mammograms?
Do ILC patients need MRI's with their mammograms?
What anti-estrogen meds are you taking?
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Hi Nancy,
Thank you for your reply.
I, too, have Lobular
carcinoma..I can barely stand to say it.
I am having a lumpectomy on Monday.....I wanted a double mastectomy but apparently Medicare won't cover removal of a healthy breast without a strong family history, which I do not have.
Also, Dr says that would be overkill..idk.
They didn't see any lymph node involvement on the scan but won't know for sure until after surgery.
I may need radiation but I am not willing to do chemotherapy.
I'm 71, just don't want to go through it.
Can you tell me if you needed any other treatment?
I will probably have to take an estrogen blocker 😒.
I'm trying not to let my family know how scared I am..but God knows.
Hope to hear back from you.
Thanks for contacting me..Lois