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Dealing with Demetia - Pre-Retirement Version

Caregivers: Dementia | Last Active: Mar 15, 2023 | Replies (11)

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@cmiddlet

I have one of these relatives, too. Supplements and "your waking mindset" supposed to make everything all better. Even a religious dig that we aren't "praying correctly" or "it is meant to be this way for you guys" - it's exhausting. I am a chemist - ain't nothing going to "cure" my 51 year old husband's LBD. Taking the fam to Lourdes to dip in the fountain - yea, great show of faith, but come on.

At this point, it'd be great to focus on whether my kids have issues on chromosome 4 and make sure they can make the best of their lives.

So what should I do? Give the IRS all the penalty money to care for my 51 year old husband in his last days or to get genetic counseling for my kids to see if its worth the risk passing the early dementia gene on to their kids?

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Replies to "I have one of these relatives, too. Supplements and "your waking mindset" supposed to make everything..."

I'm not sure that people really believe everything that they read about all the junk (but some very good stuff too) or if they are at their wit's end not knowing where to turn. My sister knows how I feel about a lot of it but our mother loved the idea of modern science and all new medications that "instantly" cure things. I have recently asked her not to recommend anything like this. If she sees an article for me to read that is outstanding that's one thing but other than that please don't bring it up. Can you say this to your relative?

I told Linn that it just interferes with what his doctor recommends and confuses things in my mind because we have already set up a medication protocol. I feel that it is extremely important to set limits on people, no matter what their intentions are. Like you, my husband is my responsibility and I don't need anyone to insert their opinions. It's not their business. If it is a problem you might consider limiting contact.

My home that I have created with Dave is our sanctuary and I will do everything and anything to protect it including keeping people who create an unhealthy environment or goes against my wishes to do it more than once. It would be like someone smoking in my home. If a peaceful environment is necessary for my husband's well being and I do everything that I can to make sure that it is that way, than damn if anyone else is going to disrupt it, or make me tense and upset.

I think that it's necessary, and you have had more experience than I have had with this, to think of it as a family disease. We share it all, poop, pee, and whatever.

Thanks for such an easy question. lol. WOW. In your heart, I think that you have the answer. If you can continue to care for your husband the way you have been then helping your kids out would be what I would do.