← Return to Chemotherapy-induced neuropathy: What helps get rid of it?

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@erichendrix

I have been to two pain clinics. The first one had a big sign at the front desk that read “We do not prescribe narcotics”. What? Oh, I remember! We’re in the throes of the greatest opioid crisis in history. Looks like I picked a bad time to get neuropathy. Prescribed a higher dose of Pregabalin, which my GP prescribed earlier. No help. How about this - the nurse from a neurology clinic I was at called me the day before my appointment to tell me that “we do not prescribe narcotics so do you still want to keep your appointment?” What? The last pain clinic where I was seen did start a trial treatment plan with Dilaudid, but, as I found out, much to my dismay, times have changed. Their protocol is that (for every appointment) I had to submit a urine sample and sign off on their drug screen paperwork to get a one month prescription refill, which the doctor canceled at my followup appointment, because he concluded I was not making enough progress to the goals he asked me to provide during my initial appointment. He did, however, succeed in making me feel like a criminal for suggesting a narcotic. Guilty ‘til proven innocent, if that’s even possible. Not sure who actually runs the clinic, the doctor or his lawyer. They got this narcotic thing locked down so hard and the bar set so high, I’m not sure how anybody qualifies for a prescription anymore. But, not to worry – he got his $600 for eight minutes of his time as he showed me the door, sending me home with nothing. Started medical marijuana the next day.

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Replies to "I have been to two pain clinics. The first one had a big sign at the..."

I am in no way advocating for you to stop using anything your doctor prescribes or anything that is helping. I would like to add a few things that might be of a tiny bit of help. I have not tried this but my friends husband uses a cbd cream on his feet twice a day and feels it helps.
I put my feet on an ice pack every night before I go to sleep. When they are cold and the fire is out, then the gabapentin helps me sleep. This does double duty for me helping with hot flashes.
Like @amandajro I can hear your frustration, and I am sorry you are going through this. Would you consider a work up at a large center or university, contrary to others. My husband and I both received excellent help at Mayo.

No one will want to hear this but as for me I am totally do not like the medical field any longer as to me it is a game with them and they don't really have a clue what is wrong and the diagnosis I think are just guessing. Mystery illnesses they don't know how to fix.

For the neuropathy in my hands, I found that wearing comfortably loose soft leather gloves, (I'm using dress, not work gloves), somehow provides immediate relief. Not sure how it works but I wonder if it may be as simple as the gloves insulating my hands from even slight air movement (I have hypersensitivity). The gloves also keep my hands warm which I find soothing.