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I'm new to this group, I have a very small net on the tail of my pancreas. I'm receiving no treatment for it at all. My concern is that it seems something can be done while it's small instead of waiting for my health to get worse. Any thoughts?
Replies to "I'm new to this group, I have a very small net on the tail of my..."
I did the watch and wait for a small (1cm) PNET on the head of my pancreas that was diagnosed in 2012 after years of symptoms. In 2019 I had a modified Whipple surgery, liver resection and liver ablation. My primary NET didn't grow any larger over the 7 years. Ask a lot of questions, get a second opinion from a NET specialist, so that you feel comfortable with your decision. My quality of life improved after my surgery because mine was functioning so in the end I wish I had surgery alot earlier. In 2012 I should have done more research/reading on my own and should have asked a lot more questions. Wishing you well on your journey.
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Hello @meleelee1 and welcome to the NETs discussion on Mayo Clinic Connect. I'm glad that you found this forum. It is important to have support and encouragement when you are dealing with any type of cancer, and especially a rare cancer like NETs.
We have several members who have NETs on the pancreas. Can you share more about this diagnosis? For example, was this discovered because you were having symptoms, how long ago was this found, are you scheduled for follow-up scans to determine if there are any changes?