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Anyone been diagnosed with CIDP? It's very rare

Autoimmune Diseases | Last Active: Oct 7, 2024 | Replies (153)

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@sdswoboda53

Headaches are common after the infusions. I’m given 2 Tylenol for the headache and 2 Benadryl for possible rash side effects. I’m told to hydrate hydrate hydrate starting 2 days before and 2 days after the infusion to help with the headache. I’m wiped out for the next few days afterwards, with flu like symptoms. I did 5 days of IVIG and now going every 3 weeks. CIDP exacerbates my fibromyalgia pain immensely. No improvement yet. I’m having problems with my hands and arms lately. Under the skin crawly feeling. Is this part of it?

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Replies to "Headaches are common after the infusions. I’m given 2 Tylenol for the headache and 2 Benadryl..."

My experience with infusions for CIDP has been headaches when the drip rate is too fast. I'm very tired for 2 days afterwords but my energy increases and pain lessens.