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DiscussionAnyone been diagnosed with CIDP? It's very rare
Autoimmune Diseases | Last Active: Oct 7 6:02pm | Replies (153)Comment receiving replies
Replies to "I have it. I began having balance issues and falling ‘out of the blue ‘ in..."
Hi, @sdswoboda53 - welcome to Mayo Clinic Connect. I'd be scared, too, if I began having balance issues out of the blue and falling. I am glad you do have a diagnosis at this point with the chronic inflammatory demyelinating polyneuropathy (CIDP) your doctor indicated.
I'd like to ask members @sherlock @mayor47 @jazzy27 @vander626 @jgk85 @jutty and others to return and share about what your doctors may have explained to you about what CIDP does to the body, and also provide an update on how you are doing currently. I'd also invite @johnbishop and @hopeful33250 to participate in this discussion.
While waiting for them to join in, here are some resources on CIDP you may find helpful:
- CIDP information from the National Organization for Rare Disorders https://rarediseases.org/rare-diseases/chronic-inflammatory-demyelinating-polyneuropathy/
- A Mayo Clinic Proceedings paper on CIDP explaining its history, diagnosis and management for medical professionals https://www.mayoclinicproceedings.org/article/S0025-6196(18)30236-2/fulltext
@sdswoboda53 - what did your doctor prescribe as far as treatment for your CIDP?